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Resources
We know how frustrating it is to not know where to go for help, or to get information, or to find support and services that are available. Below are some - certainly not all - links, information and contacts that may be able to direct you to the right places. Should you come across other items that you think would be beneficial to others, feel free to send that to us at support@fxam.org.
Be sure to check back often as we add more and more to this page.
FXAM does not endorse any products, treatments or therapies and encourages you to contact your doctor, health-care provider or therapist before making any medical decisions. Full Disclaimer
Be sure to check back often as we add more and more to this page.
FXAM does not endorse any products, treatments or therapies and encourages you to contact your doctor, health-care provider or therapist before making any medical decisions. Full Disclaimer
National
National Fragile X Foundation
Fragile X-associated Tremor/Ataxia Syndrome (FXTAS)
CDC - What should you know about Fragile X Syndrome(FXS)?
The Developmental & Fragile X Resource Centre
Dr. Mike's Psychiatry Blog
Fraxa Research Foundation
GeneTests -- a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons.
Marcia Braden Ph.D., P.C.
Your Genes Your Health - Fragile X Page
Research
ClinicalTrials.gov - search for "fragile X"
Fragile X Research Registry
Our Fragile X World
Seaside Therapeutics
National Fragile X Foundation
Fragile X-associated Tremor/Ataxia Syndrome (FXTAS)
Fragile X Specific
CDC - What should you know about Fragile X Syndrome(FXS)?
The Developmental & Fragile X Resource Centre
Dr. Mike's Psychiatry Blog
Fraxa Research Foundation
GeneTests -- a publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons.
Marcia Braden Ph.D., P.C.
Your Genes Your Health - Fragile X Page
Research
ClinicalTrials.gov - search for "fragile X"
Fragile X Research Registry
Our Fragile X World
Seaside Therapeutics
State & Local
Advocacy
Michigan Alliance for Families
Michigan Develomental Disabilities Council
Michigan Protection and Advocacy Services
The Arc of Michigan - Find your local chapter
UCP of Metropolitan Detroit
Education
Center for Educational Networking - Michigan (CENMI)
Michigan Department of Education, Office of Special Education
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Friendship Circle: Located in West Bloomfield and offers an interactive environment for children with special needs to learn basic life skills in a fun and supportive environment.
Advocacy
Michigan Alliance for Families
Michigan Develomental Disabilities Council
Michigan Protection and Advocacy Services
The Arc of Michigan - Find your local chapter
UCP of Metropolitan Detroit
Education
Center for Educational Networking - Michigan (CENMI)
Michigan Department of Education, Office of Special Education
***
Friendship Circle: Located in West Bloomfield and offers an interactive environment for children with special needs to learn basic life skills in a fun and supportive environment.
