February 29, 2020
ROARING '20s GALA
February 24-25, 2020
National Fragile X Advocacy Day
February 17, 2020
FXAM School Break Playdate
December 14, 2019
FXAM Holiday Party
November 16, 2019
FXAM Moms: Let's Do Brunch!
September 7, 2019
20th Annual Golf Outing
July 27, 2019
FXAM Family Picnic
July 12, 2019
Parents Night Out
Due to the Covid-19 quarantine, all FXAM meetings and events are cancelled until further notice. We will post on our FXAM Facebook page if there will be any virtual meetings/events. Stay tuned. We will gather in thanks after this has passed. Wishing you continued health!
17th International Fragile X Conference
More details and registration HERE
May 29-30, 2020
Fragile X Across the Lifespan
June 27, 2020
Premutation Carrier Issues
July 22, 2020
Fragile X Research Roundup
Time Sensitive: FXAM Scholarships to the NFXF International Conference are available!
Although the July 2020 Orlando conference scheduled has been cancelled, the National Fragile X Foundation will be presenting their biennial conference virtually and the Fragile X Association of Michigan is inviting our members to participate! We are offering scholarships for the full conference registration fee and hope that many FXAM members will register to get the latest information available to our community. All sessions will be recorded, so you can view them live and ask questions, or see them on-demand, along with handouts, until the end of the year. For those who have always wanted to attend, but have been unable to travel to a conference, this is the perfect opportunity to learn information from highly regarded experts on behavior, medication, therapies, clinical trials, carrier issues, basic science, clinical trials and more.
To request a FXAM scholarship, email Laureen at
firstname.lastname@example.org and Mary Beth at
email@example.com by this Sunday, May 24, with your first and last names and preferred email address.
We will send the list of FXAM participants to NFXF. You will be sent an email from Missy Zolecki, NFXF Chapter Coordinator, with a code and a link to register. You must enter the code as you register to receive the FXAM scholarship. We are allowing one FXAM scholarship per family. The conference sessions will be able to be viewed on a laptop, tablet or phone. Registration must be completed by next Thursday, May 28, to have access to the first sessions being held May 29-30.
To enhance your family's support system, we are also opening this up to others. While our FXAM members will have priority for scholarships, please submit name, title and email address by this Sunday, May 24, if you have others who work with your family member who would like to participate. (for example, teachers, therapists, doctors, etc)
May 29-30 (Friday and Saturday) - Fragile X Syndrome Across the Lifespan with a focus on living with and caring for individuals with fragile x across all ages. Six live speaker-led sessions + Q&A, five live panels + Q&A, and over 25 pre-recorded sessions. Sessions include the ABCs of Behavior, Targeted Medication Interventions, a panel discussion on Education and so much more. The keynote speaker will be Sophia James, American Idol Top 10 Contestant, who has a brother with fragile X syndrome!
June 27 (Saturday) - Premutation Carrier Issues, including FXAND, FXTAS and FXPOI. Includes live speaker-led sessions + Q&A and more than 10 on-demand sessions.
July 22 (Wednesday and Fragile X Awareness Day!) - Fragile X Research Roundup. Presenters range from basic scientists to those conducting clinical trials for treatments. It will include top researchers discussing the latest research topics and will include more than 30 on-demand sessions about recently completed or ongoing studies.
Recorded Livestream: Attend live and recorded video presentations during the scheduled time or on-demand at your convenience until December 31, 2020.
Plan Ahead: With the conference app, search for and add sessions into your own personal agenda and set reminders.
Network: Network with recommended connections based on similar interests, location, background, profession and more.
Connect: Connect with other attendees in virtual meetups and discussions.
Be Heard: Share feedback through live polling and session surveys.
Hang Out: Attend virtual hangouts – happy hour, scheduled sessions or create your own.
Bonus Materials: Access related presentation slides, articles and other valuable documents until the end of the year.
There will also be chat rooms set up with different topics, a virtual meet and greet, a coffee hour, group breakout sessions and even one-on-ones with other attendees.
There will be time to ask questions at the end of each live session. A moderator will be screening the questions coming in and present them to the speaker for discussion.
You can participate in the live sessions, save some for later, or save all of them for later. The benefit is that you can see every session at the time of your choosing and don't have to miss a session as happen at the in-person conference when two sessions you want to attend overlap.
Looking forward to seeing everyone in attendance!
FXAM Board of Directors
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