Our next support meeting is scheduled for Saturday, April 1,  2023

Go to our Support Page for more information.

 The Fragile X Association of Michigan (FXAM)
unites the Fragile X community to:​

  • Enrich lives through educational and emotional support.
  • Promote public and professional awareness. 
  • Advance research toward improved treatments and a cure for Fragile X and it's associated disorders. 


Who we are, check out our video  HERE.

The Best Club You Never Wanted to Join

The History of the Fragile X Association of Michigan (FXAM). 

The Fragile X Clinic at the University of Michigan

Please call 734-764-0579 to make an appointment.


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Welcome to the Fragile X Association of Michigan

Fragile X syndrome (FXS) is a genetic condition that causes varying degrees of mental impairment ranging from mild learning disabilities to mental retardation (cognitive impairment).  FXS is the most common inherited form of cognitive impairment known and a leading known cause of autism.  FXS is caused by one gene that interferes with the formation of a special protein normally found in the brain.  As many as one in 151 women and one in 468 men are carriers of this gene, and it affects one in 3,600  to 4,000 boys and one in 4,000 to 6,000 girls.

Some characteristics (not all are always present) of Fragile X Syndrome are:

  • Mild learning problems to severe cognitive impairment
  • Behavior issues such as ADHD and ADD
  • Autistic-like features such as poor social skills, poor eye contact, hand-biting and hand-flapping
  • Shyness and social anxiety
  • Prominent ears, prominent forehead and long narrow face
  • Sensitivity to sounds or lights
  • Difficulty adjusting to change

Some older adults with premutations (carriers) may develop a neurological condition called Fragile X-associated tremor/ataxia syndrome (FXTAS). Often misdiagnosed as a "Parkinson's-like" condition, individuals may also have symptoms of ataxia, neuropathy and dementia. Fragile X-associated primary ovarian insufficiency (FXPOI), commonly causes early menopause, is a condition that affects 20-25% of the female FXS carrier population. Learn more on our Resources page. 

​​​​​​​​Upcoming Events
Save the Date! 

February 27-28, 2023

Advocacy Day

Washington D.C.


 Go to our Events Page 
for more information

Past Events

October 22, 2022
FXAM Father and Son Picnic/Play Day

August 13, 2022
FXAM Family Picnic
July 22, 2022
World Fragile X 
Awareness Day

July 16, 2022
FXAM Moms:
Let's Do Lunch!

July 14-17, 2022
18th International
Fragile X Conference
San Diego, California​​

May 21, 2022
Creative Arts Studio

January 19, 2021

Zoom Meeting
September 12, 2020

​21st Annual
Golf  Outing

​​​July 22, 2020
​Fragile X Research Roundup
May 29 - 30, 2020

Fragile X Syndrome Across the Lifespan
​​June 27, 2020
​​Premutation Carrier Issues

February 24-25, 2020

The Fragile X Association of Michigan is a National Fragile X Foundation (NFXF) Community Partner. The NFXF website is loaded with all the medical and technical information you need.  (click on the logo above to go to the NFXF website). 

Be sure to check us out on Facebook 

Fragile X Association of Michigan

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Donations can be

mailed to:

 Fragile X Association of Michigan

 P.O. Box 1414

 Troy, MI 48099-1414

 Make checks payable to: FXAM