Advocacy Day 2020
February 24-25

Washington D.C. 

Learn more and RegisterHERE

Advocacy Day - FXAM Members Share Their Experiences

 Advocacy Day, Giving Fragile X a Voice  by Kim Young

Advocacy Day 2010 - One Hundred for One Million by Kim Young 

From Helplessness to ​Advocacy  by Mike Makris

Advocacy with the Price Family by The Price Family​

​My Perspective of Advocacy Day  by Heather Van Dam5-6


Congressman Gary Peters (D-MI) with the Price Family

Congressman Gregg Harper (R-MS) with Mary Beth Langan and Ted Coutilish

All advocates from across the U.S. on the Capitol steps the morning of March 7, 2012, before they began their meetings on The Hill.

Congressman Hansen Clarke (D-MI) with Joyce Kreger, Ted Coutilish and Mary Beth Langan 

Stay involved, stay up-to-date - please join the Fragile X Advocates Facebook Group

Advocacy Day 2012

The Price Family on the steps of the Capitol 

Ted Coutilish advocated not only on The Hill, but on the streets of D.C. 

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever does”

~Margaret Mead~

The Fragile X Association of Michigan continues to play an active role in national policy through the Advocacy Day efforts of the National Fragile X Foundation.  For the ninth straight year FXAM, along with resource groups from around the country, sent advocates to Washington, D.C. to meet with members of congress to support the legislative advocacy efforts of the NFXF.  These efforts include additional funding to the Centers for Disease Control (CDC) for the Fragile X Clinical & Research Consortium, Department of Defense (DoD) and National Institute of Health (NIH) Appropriations Report Language, and support for the Achieving a Better Life Experience (ABLE) Act of 2009.

You too can be an advocate - without even going to Washington.  Here's how:

  1. Go to the the NFXF Advocacy Page and register to receive periodic Advocacy Updates which will include a quick link to send personalized emails when your advocacy is needed.
  2. Contact your member of congress to support Fragile X initiatives by going to
  3. Phone the Capitol Switchboard (202) 224-3121 to connect right to your member of congress.

If you have any questions about getting involved please contact Jeffrey Cohen at National Fragile X Awareness Day 2009 was a HUGE success!  Click the links below to see some of the things that happened.

Article in the Grosse Pointe News by FXAM Executive Board Member Mary Beth Langan and her husband Ted Coutilish

Congressional Resolution in support of National Fragile X Awareness Day 2009