The Price Family on the steps of the Capitol
“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever does”
The Fragile X Association of Michigan continues to play an active role in national policy through the Advocacy Day efforts of the National Fragile X Foundation. For the ninth straight year FXAM, along with resource groups from around the country, sent advocates to Washington, D.C. to meet with members of congress to support the legislative advocacy efforts of the NFXF. These efforts include additional funding to the Centers for Disease Control (CDC) for the Fragile X Clinical & Research Consortium, Department of Defense (DoD) and National Institute of Health (NIH) Appropriations Report Language, and support for the Achieving a Better Life Experience (ABLE) Act of 2009.
You too can be an advocate - without even going to Washington. Here's how:
If you have any questions about getting involved please contact Jeffrey Cohen at firstname.lastname@example.org National Fragile X Awareness Day 2009 was a HUGE success! Click the links below to see some of the things that happened.
Article in the Grosse Pointe News by FXAM Executive Board Member Mary Beth Langan and her husband Ted Coutilish
Congressional Resolution in support of National Fragile X Awareness Day 2009
Congressman Gary Peters (D-MI) with the Price Family
Ted Coutilish advocated not only on The Hill, but on the streets of D.C.
Congressman Gregg Harper (R-MS) with Mary Beth Langan and Ted Coutilish
All advocates from across the U.S. on the Capitol steps the morning of March 7, 2012, before they began their meetings on The Hill.
Congressman Hansen Clarke (D-MI) with Joyce Kreger, Ted Coutilish and Mary Beth Langan
Stay involved, stay up-to-date - please join the Fragile X Advocates Facebook Group
Advocacy Day 2012
As details become available, this page will be updated with 2019 information.
Advocacy Day - FXAM Members Share Their Experiences
Advocacy Day, Giving Fragile X a Voice by Kim Young
Advocacy Day 2010 - One Hundred for One Million by Kim Young
From Helplessness to Advocacy by Mike Makris
Advocacy with the Price Family by The Price Family
My Perspective of Advocacy Day by Heather Van Dam5-6
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