Advocacy Day 2024
February 26-27

Washington D.C. 

Learn more and Register  HERE

Advocacy Day - FXAM Members Share Their Experiences

 Advocacy Day, Giving Fragile X a Voice  by Kim Young

Advocacy Day 2010 - One Hundred for One Million by Kim Young 

From Helplessness to ​Advocacy  by Mike Makris

Advocacy with the Price Family by The Price Family​

​My Perspective of Advocacy Day  by Heather Van Dam5-6

Congressman Gary Peters (D-MI) with the Price Family (2012)

Ted Coutilish advocated not only on The Hill, but on the streets of D.C.  (2012)


Congressman Hansen Clarke (D-MI) with Joyce Kreger, Ted Coutilish and Mary Beth Langan (2012)

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever does”

~Margaret Mead~

The Fragile X Association of Michigan continues to play an active role in national policy through the Advocacy Day efforts of the National Fragile X Foundation.  

You too can be an advocate - without even going to Washington.  Here's how:

  1. Go to the the NFXF Advocacy Page and register to receive periodic Advocacy Updates which will include a quick link to send personalized emails when your advocacy is needed.
  2. Contact your member of congress to support Fragile X initiatives by going to
  3. Phone the Capitol Switchboard (202) 224-3121 to connect right to your member of congress.

Article in the Grosse Pointe News by FXAM Executive Board Member Mary Beth Langan and her husband Ted Coutilish

Congressional Resolution in support of National Fragile X Awareness Day 2009

Congressman Gregg Harper (R-MS) with Mary Beth Langan and Ted Coutilish (2012)

Jennifer and Aidan Silverton, Senator Gary Peters (D-MI), Darienne and Laureen Majeske (2020)

Stay involved, stay up-to-date - please join the Fragile X Advocates Facebook Group